Psychologie pro praxi chce navázat na cennou tradici předchozího odborného časopisu Psychologie v ekonomické praxi s tím, že nabízí prostor pro publikování původních příspěvků z psychologie i příbuzných disciplín. Preferovány jsou tyto základní obory: psychologie pedagogická a školní, psychologie práce a organizace, psychologie sociální a vývojová, psychologie zdraví a klinická psychologie. Vítány jsou příspěvky, které se zabývají studiem psychologických témat v rámci různých aplikovaných oblastí či napříč kulturami.
PSYCHOLOGIE PRO PRAXI, Vol 52 No 2 (2017), 25–41
Kvalita života dětí a dospívajících po léčbě onkologického onemocnění – porovnání s pohledem jejich rodičů
[Quality of life of children and adolescents after treatment of oncological illness – comparison with their parents’ view]
Tereza Blažková, Marek Blatný, Tomáš Kepák, Martin Jelínek, Veronika Koutná
DOI: https://doi.org/10.14712/23366486.2018.2
zveřejněno: 20. 09. 2018
Abstract
Most studies of children and adolescents following oncology treatment point to a good quality of life in these individuals. However, their parents’ views may differ considerably. They can worry more about the future and the satisfaction of their children. The present study identifies the differences between the satisfaction evaluation of the individual sources of quality of life from the point of view of children and adolescents themselves and from the point of view of their parents. At the same time, it also monitors the differences between different age groups. The research group consists of 172 children and adolescents after treatment of cancer and their parents. Data on the quality of life of children and adolescents after treatment was obtained using the SQUALA Quality Of Life Questionnaire. The assessment of satisfaction with specific sources of quality of life is very different for the youngest age group. Children report that they are much more satisfied with most sources of quality of life, both in comparison with older teens and in comparison with parents.
klíčová slova: children and adolescents after treatment of oncological disease; quality of life; parental view
reference (22)
1. Badr, H., Chandra, J., Raheem, J. P., Ater, J. L., Urbauer, D., Cruz, C. D., Demark-Wahnefried, W. (2013). Health-related quality of life, lifestyle behaviors, and intervention preferences of survivors of childhood cancer. Journal of Cancer Survivorship, 7, 523–534. CrossRef
2. Blatný, M., Kepák, T., Vlčková, I., Jelínek, M., Tóthová, K., Pilát, M., Slezáčková, A., Sobotková, V., Bartošová, K., Hrstková, H., Štěrba, J. (2011). Quality of life of childhood cancer survivors: handicaps and benefits. Československá psychologie, 55(2), 112–125.
3. Blatný, M., Jelínek, M., Kepák, M. (2016). Subjective quality of life of adolescent and young adult survivors of childhood cancer in long term perspective: Preliminary results of longitudinal study QOLOP. Československá psychologie, 60(1), 82–87.
4. Bradley Eilertsen, M. E., Jozefiak, T., Rannestad, T., Indredavik, M. S. Quality of Life in Children and Adolescents Surviving Cancer. European Journal of Oncology Nursing, 16, 185–193. CrossRef
5. Decker, C. L. (2007). Social support and adolescent cancer survivors: A review of the literature. Psycho-Oncology 16, 1–11. CrossRef
6. van Dijk, J., Husiman, J., Moll, A. C., Schouten-van Meeteren, A.YN., Bezemer, P. D., Ringens, P. J., Cohen-Kettenis, P. T., Imho, S. M. (2007). Health-related quality of life of child and adolescent retinoblastoma survivors in the Netherlands. Health an Quality Life Outcomes, 5–65. CrossRef
7. Dragomirecká, E. et al. (2006). SQUALA. Příručka pro uživatele české verze Dotazníku subjektivní kvality života SQUALA. Praha: Psychiatrické centrum Praha.
8. Eiser, C., Morse, R. (2001). Can parents rate their child's health-related quality of life? Results of a systematic review. Quality of Life Research, 10, 347–357. CrossRef
9. Eiser, C., Eiser, J. R., Greco, V. (2004). Surviving childhood cancer: quality of life and parental regulatory focus. Personality and Social Psychology Bulletin, 30, 123–133. CrossRef
10. Gordinj, M. S., van Litsenburg, R. R., Gemke, R. J., Huisman, J., Bierings, M. B., Hoogerbrugge, P. M., Kaspers, G. J. L (2013). Sleep, fatigue, and quality of life in survivors of childhood acute lymphoblastic leukemia. Pediatric Blood Cancer, 60, 479–485. CrossRef
11. Koutná, V., Blatný, M., Jelínek, M., Kepák, T., Blažková, T. (2014). Sociální opora dětí a adolescentů po léčbě onkologického onemocnění v porovnání s dětmi a adolescenty z běžné populace. Československá psychologie, 58(4), 326–339.
12. Lehmann, V., Grönqvist, H., Engvall, G., Ander, M., Tuinman, M. A., Hagedoorn, M., Samderman, R., Mattsson, E., von Essen, L. (2014). Negative and positive consequnces of adolescent cancer 10 years after diagnosis: an interview-based longitudinal study in Sweden, Psycho-oncology, 23, 1229–1235. CrossRef
13. Long, K. A., Marsland, A. L. (2011). Family adjustment to childhood cancer: A systematic review. Clinical Child and Family Psychology Review, 14(1), 57–88. CrossRef
14. Ritchie, M. A. (2001). Sources of emotional support for adolescents with cancer. Journal of Pediatric Oncology Nursing, 18, 105–110. CrossRef
15. Rueegg, C. S., Gianinazzi, M. E., Rischewski, J., Popovic, M. B., von der Weid, N. X., Michel, G., Kuehni, C. E. (2013). Health-related quality of life in survivors of childhood cancer: the role of chronic health problems. Journal of Cancer Survivorship, 7(4). CrossRef
16. Sato, I., Higuchi, A., Yanagisawa, T., Mukasa, A., Ida, K., Sawamura, Y., Sugiyama, K., Saito, N., Kumabe, T., Terasaki, M., Nishikawa, R., Ishida, Y., Kamibeppu, K. (2014). Cancer-specific health-related quality of life in children with brain tumors. Quality of Life Research, 23, 1059–1068. CrossRef
17. Shankar, S., Robison, L., Jenney, M. E. M., Rockwood, T. H., Wu, E., Feusner, J., Friedman, D., Kane, R. L., Bhatia, S. (2005). Health-related quality of life in young survivors of childhood cancer using the Minneapolis-Manchester Quality of Life-Youth Form. Pediatrics, 115(2), 435–442. CrossRef
18. Schulte F., Wurz, A., Reynolds, K., Strother, D., Dewey, D. (2016). Quality of life in survivors of pediatric cancer and their siblings: the consensus between parent-proxy and self-reports. Pediatric Blood Cancer, 63(4), 677–683. CrossRef
19. Speechley, K. N., Barrera, M., Shaw, A. K., Morrison, H. I., Maunsell, E. (2006). Health- related quality of life among child and adolescent survivors of childhood cancer. Journal of Clinical Oncology, 24(16), 2536–2543. CrossRef
20. Woodgate, R. L., Tailor, K., Yanofsky, R., Vanan, M. I. (2016). Childhood brain cancer and its psychosocial impact on survivors and their parents: a qualitative thematic synthesis. European Journal of Oncology Nursing, 20, 140–149. CrossRef
21. Yi, J., Kim, M. A., Sang, J. (2016). Worries of Childhood Cancer Survivors in Young Adulthood. European Journal of Oncology Nursing, 21, 113–119. CrossRef
22. Zeltzer, L. K., Lu, Q., Leisenring, W., Tsao, J. C., Recklitis, C., Armstrong, G., Mertens, A. C., Robison, L. L., Ness, K. K. (2008). Psychosocial outcomes and health-related quality of life in adult childhood cancer survivors: a report from the childhood cancer survivor study. Cancer Epidemiology Biomarkers & Prevention, 17(2), 435–446. CrossRef
Kvalita života dětí a dospívajících po léčbě onkologického onemocnění – porovnání s pohledem jejich rodičů is licensed under a Creative Commons Attribution 4.0 International License.
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cena tištěného čísla: 80 Kč
ISSN: 1803-8670
E-ISSN: 2336-6486
